I couldn't believe when I opened this blog today that it had been since March that I had posted anything. So much has changed. I've decided to go back to this blog because I felt like I wanted to be able to document our new journey with Evan and continuing journey with Lauren, if for no one else but myself, and I hope that some of you will follow us along the way. So much has already happened and I want to remember everything. The first thing that comes to mind when I think about the day we got Evan's diagnosis was how wonderful people have been to us. Something as life changing as this changes your relationship with people, and you definetly figure out quickly who will be there for you in the tough times. I don't think I will ever be able to express my thanks and gratitude to those people who have been by our side during this time. I think one of the hardest things about having a baby with Spina Bifida, is the not knowing. When we met with multiple doctors during my pregnancy we were always told such a range of things that Evan may have to deal with once he was born. It's very much a wait and see situation. I think that I have always been okay with that. A mom of a little girl who also has Spina Bifida told me early on after our diagnosis "things are going to happen, but they aren't all going to happen in one day." Probably the best advice I've ever gotten, not just applying to our situation with Evan, but to my whole life. Things are okay today, but tommorow they may change, and when they do I will worry about them then and figure out how best to deal with them. I know that worrying today about what may happen with Evan is not goood for any of us. So for now, he is doing better than anyone expected and is showing everyone what a stong little boy he is. Evan was born on Friday, October 9, 2009 at 2:41 pm weighing 4 pounds 1 ounce, measuring 16 inches long by c-section. Like a lot of other mothers, I imagine that after delivering a baby once you hear that sweet cry, you let out a sigh of relief. A sound I won't forget. So tiny and sweet. The nurses quickly cleaned him up I was able to see him quickly, then he was off to the Neonatal Intensive Care Unit to begin his care.Our time in the NICU was difficult, but I count our blessing every day that he had such amazing care while we were there. After 29 long days Evan came home. Amazingly, he is already 7 weeks old. In those 7 short weeks he has already been through so much, but he is doing so well. So many days I find myself looking at him and thinking he looks just like a normal baby, and then it occurs to me that he is. I know that we will have many hurdles along the way, but right now, he is doing amazing and fills our hearts with love and joy.
